The reason I started Care Box actually starts way way back when I was 25 years old and I was diagnosed with a hereditary cancer syndrome called M.E.N. Type 1. This genetic syndrome was passed down to me from my father who died from it when he was 44, and I was just 3 years old. There are 8 members of our family who are currently affected by this disease and I became an advocate early on to try and understand this complex disease that continues through our generations. Over the years I have undergone numerous surgeries to remove tumours, and I will face more surgery and treatments in the near future.

In the beginning when I was facing my first big surgery, I really wanted to talk to other patients about their own experience, especially about their recovery the time it would require. But there wasn't any organisation in NZ that even knew about these type of tumours, let alone any groups that brought patients together. I was frustrated by the lack of patient support, so in 2012 I founded Unicorn Foundation New Zealand (now called Neuroendocrine Cancer Foundation NZ) to support and help patients and families affected by Neuroendocrine Cancers. Our amazing team quickly grew and boy did we achieve a lot in a short space of time ! In 2015 we fundraised to establish a key type of diagnostic scan called a Gatate PET-CT for the first time in New Zealand, (this scan has also helps thousands of Prostate Cancer patients too, called PSMA). We also lobbied government agencies to establish a life extending treatment called PRRT which is now available to all New Zealanders. This treatment is also helping prostate cancer patients too. I also set up a free national support service for patients by nurses that continues to this day. I also participated and contributed to numerous research projects and continue to help whenever I can.

Throughout all these experiences, it has have given me a unique perspective on life - it has taught me how important it is to learn as much as you can about any health issue you may face and the importance of timely treatment and support. It can also be so much easier when you have good support and have someone in your corner during the tough times.

Care Box is a way to facilitate meaningful interactions, to ensure no one feels isolated in their own journey. So when you know someone is having a challenging time, it's important to remember that you can’t fix what they are going through but if they know you are there for them - it will help them immensely. 

Care Box is here to make it easier for you, to be there for them.

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